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Molly Bent isn’t your normal 6 year-old girl. She knows that one day, she will be blind.
She has a rare genetic condition called Retinitis Pigmentosa, which is a form of retinal dystrophy and is caused by abnormalities of the photoreceptors or the retinal pigment epithelium. Her parents Chris and Eve want to make the most of Molly’s time left with sight, so they are helping her with a bucket list that’ll touch your heart.
She has a rare genetic condition called Retinitis Pigmentosa, which is a form of retinal dystrophy and is caused by abnormalities of the photoreceptors or the retinal pigment epithelium. Her parents Chris and Eve want to make the most of Molly’s time left with sight, so they are helping her with a bucket list that’ll touch your heart.
Molly was born with perfect sight, but within the last year she was diagnosed with retinitis pigmentosa. She and her parents came up with a “bucket list” of things she wants to see before it’s too late.
She also has a long list of places she’d love to see, even if her parents aren’t sure if they can ever afford it.
Eve’s brother has the incurable disease as well, but was shocked when Molly was diagnosed. She believed at one point it couldn’t be passed on to girls.
Now, the Bent family is trying to raise money for Molly, so she can see everything in the world she wants to.
Charlotte and Samuel, Molly’s younger siblings, now get tested often for the same disease, just in case they have it as well.
As she loses her sight, Molly will learn white stick training and to read Braille, to make the transition easier.
It’s uncertain when exactly Molly will lose her sight, but the disease seems to be progressing fairly quickly.
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